Harry’s HAT is a national, user-led charity dedicated to improving the lives of children with hydrocephalus and the families who love and care for them.

Hydrocephalus affects around 1 in every 770 babies born in the UK yet awareness remains low. It is a lifelong condition that often requires repeated brain surgery.

Founded by parents with lived experience, Harry’s HAT is the only UK charity focused solely on supporting children with hydrocephalus.

We provide practical and emotional support to families, deliver education and training for healthcare professionals and campaign for improvements in early diagnosis and emergency care.

Our Get-A-Head campaign raises awareness of the importance of routine infant head circumference measurements, while our work on a national Shunt and ETV Emergency Care Pathway aims to improve care for children experiencing potentially life-threatening complications.

By working alongside families and healthcare professionals, we are helping to make life better for children with hydrocephalus across the UK.